The call The call for my chemotherapy came through at 11.45 on Wednesday. I was in the middle of a uni tutorial, doing a group plan for a class discussion. […]

It is a strange thing, to change. Obviously, we are not talking about an outfit or a preference in music. To actually experience your personality change in a considerably short […]

Hair loss, or alopecia, is apparently a pretty common event in the life of people with any type of Lupus. I know I have suffered from it since I was […]

We all know illness has a cost. Anything that you live with for longer than a week, or that changes the way the body behaves has a cost. This is […]

The day was muggy. Western Australia had seen so much rain in the last few days. The fact that N and G were able to make it to Perth and […]

When I collapsed in the university library on May 17, I was thunderstruck. To be functioning at a normal rate, and then wake up a day later with little memory […]

I have returned from my university in-school practicum teaching experience. I was waking at 6 am or before during my time away and was loving it, strangely enough. Since last […]

I will start with the facts. I was told by my neuroimmunology specialists on September 12 that there was more inflammation in my brain. The inflammation is caused by my […]

Protein curbs the steroid appetite

I do not want to bring up endlessly all my issues with taking Prednisolone, Prednisone or any other type of steroids every time I am prescribed this medication. I would […]

living with lesions is like swimming with sharks

The call came on December 22 2015, telling me there was no inflammation activity in my brain. The translation of this was the Rituximab infusions had worked. There was no […]

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