I have been busily sitting in my bed in my ward, waiting for conversations and confirmations. I came into Fiona Stanley Hospital on Wednesday 5 August following what appeared to be […]

A few weeks ago I had a bit of trouble with internal bleeding. I mentioned it to many people, as well as here and I had a resounding response from […]

I have mentioned often that I have had strokes and seizures, as well as non-specific episodes, as a result of my vasculitis. What I have failed to mention is exactly what happens in these circumstances. To be honest, I only recently was able to find out what all of these reactions were for myself and how to determine which each was and when it was happening. It is only responsible of me now to share that knowledge so that everything is cleared up.

My Lupus is atypical because it is ‘internet typical’

It was vital for me to provide an overview of Systemic Lupus Erythematosus (SLE or Lupus). Not only because it was a pretty hefty sum of information on its own, but also because you needed to understand about the illness as it typically is discussed. I referred close to the end of the text about how it can vary for individuals in how aggressive it is and the specifics of how it occurs within the body. I did this for a very important reason and that is this:

There is no typical Lupus patient.

Lupus is an autoimmune disease. It is not a virus, and so is not transmittable. It is not something that occurs as you age, you can’t induce it by living any particular lifestyle, although there are theories that some people may have triggered early onset of particular symptoms. Certainly one you have been diagnosed and living with it for a few years you may trigger flares, however as a long-time sufferer of this disease I cannot see any point in my life in which I placed my body in a situation which may have led to this. I also don’t believe this is a punishment for my ‘sins’, nor is it God’s way of testing me or making me a better person or due to something that occurred in a past life. I was simply born with the DNA that drew the lottery, so to speak.

But where are my manners? I haven’t even begun in the natural order of these things so let me go back a step.

I’ve been so inconsiderate. I’ve been lost in my own world of thought and when I do surface here it is normally with some musing over health versus ill-health or […]

I have been both rather eager and reluctant to review this stage of the saga that has been my holidays. This is due to exactly how much of a roller […]

The team wasted no time in getting started on their tests for me. The day after my 15 vial blood test I was due to start my pincushion episodes with […]

As to why I was in hospital, at this stage I was unsure. As such I had no idea what to do when I got there, how long I would […]

I suppose by now you may have noticed I am only recapping a blow-by-blow of this Brain Farts saga. A fair amount of people do not realise that medicine is […]

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