I hear all too frequently the sad stories of parents with adult children who suffer from chronic illnesses like myself. Unlike myself these other children have pushed their parents away and maintained a solid, heart-breaking barrier between the two. It shames me to admit this is something I can understand only to well how and why this happens.
As you may or may not know this past month has been quite an active time for my body when it comes to my health. I was raced to Fiona Stanley Hospital following a swift surprise onset of what appeared to be my inexplicable ‘anaphylaxis’. By this I mean that some time after 8pm my stomach began cramping, eyes reddened and itching, my lips swelling and airways closing. There is a small amount of time for me to seek medical attention before my airways close off and I lose consciousness. I made it and was treated, only losing three days to catching up on sleep. Exactly a week later my skin decided that it was not pleased with something and it began reacting to another mystery allergy with a my full-blown invisible skin rash. For the fortnight since then I have been coping with the skin allergy only with daily antihistamine prescription medicine Endep.
At this point I have to state very clearly that for the most part I am just pleased that I haven’t yet experienced any of the colds that are making the rounds at present. Prior to the hospital visit I had been to see my GP (General Practitioner) Evs regarding some other concerns. One of these was contraception and the other was a pain in my lower abdomen.
Given my recent visit to hospital I thought I would share what I have found out in the past few years about laws, social and cultural practices and personal rights for the individual during times of health concerns.
I am not going to specify the exact laws, because in Australia they vary between states, and change at irregular times. Also it helps no one if I tell you a specific law or act in Australia and you are in New Zealand or Canada (if you need me to point out that laws change between countries then I want you to find the nearest person and hug them.)
There are not only laws, but also every work place will have workers rights and practices that you agree on when you enter an employment role. These are found in your contract. If you are in any level of education; primary, secondary or tertiary, the institution you are involved in will have practices to ensure you are able to continue your study. As my lecturers say, they are there to help you pass not ensure you fail.
From the instances of the first diagnosis you are even entitled to make some requests and demands of your doctor, I will talk about those too so you can start on the right foot and catch up where you need to.
I also will admit freely that I am not that well versed in the entire law of anywhere and so to start listing specifics is just going to start trouble. What I will do instead is point out what should exist and what you should be thinking about, and then direct you in the way of making headway in your own time.
Paul Weston (the talented Gabriel Byrne) is a therapist. In the course of a series you see Paul attend to a handful of patients out of his private home practice. Each episode is a session, each patient has 8-10 sessions. The incredible genius of this show is the single focus of each episode.
This is not a fast paced show and is not for people who like/need to have their ideas challenged or need to see a lot of action, scene changes and fast paced conversation.
This is a show for people who are interested in the process of therapy, either for their misgivings on the topic, to understand what the process is, or to see the intricacies of how different personalities handle situations.