Hate is such a strong word. It is an emotion I have been trying to avoid feeling over the last month. Actually, if I were to be precise, the higher […]

The lead up to my second infusion of Rituximab was much less eventful than the first attempt and the first actual event, which was the second attempt. I had been […]

I cannot help but feel that what I am about to share is not something that I alone go through. I also cannot help but feel that many people who […]

I am a little skewif (if that is the/a word) on dates and whatnot so please just go with it. This post is intended as a factual recount on what […]

I have been busily sitting in my bed in my ward, waiting for conversations and confirmations. I came into Fiona Stanley Hospital on Wednesday 5 August following what appeared to be […]

My mother has been staying with me this week. Monday she took me to the Neurologists at Royal Perth Hospital (RPH). That was a good appointment but there was not […]

I have been awash these recent months with a new symptoms. To be honest you have not heard so much of it, not near as much as it has consumed […]

I have finished my first semester of university for the year. This means that half of the year is over! A big sigh of relief has oozed out of every […]

I have mentioned often that I have had strokes and seizures, as well as non-specific episodes, as a result of my vasculitis. What I have failed to mention is exactly what happens in these circumstances. To be honest, I only recently was able to find out what all of these reactions were for myself and how to determine which each was and when it was happening. It is only responsible of me now to share that knowledge so that everything is cleared up.

My Lupus is atypical because it is ‘internet typical’

It was vital for me to provide an overview of Systemic Lupus Erythematosus (SLE or Lupus). Not only because it was a pretty hefty sum of information on its own, but also because you needed to understand about the illness as it typically is discussed. I referred close to the end of the text about how it can vary for individuals in how aggressive it is and the specifics of how it occurs within the body. I did this for a very important reason and that is this:

There is no typical Lupus patient.

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