I wanted to hold off on this post until I had something to give you. Suddenly in a whirlwind, it is here, my something. Monday 17 August very late in […]

I slept better after Gallowe left Sunday night. This is due to the earlier visit I’d had from the weekend neurology team when I had informed them of the extent […]

I have been busily sitting in my bed in my ward, waiting for conversations and confirmations. I came into Fiona Stanley Hospital on Wednesday 5 August following what appeared to be […]

I sit in the foyer of this morning’s lecture theatre. It’s after 10am and I’ve been awake for over two hours, but it feels like mere moments ago. Stepping off […]

Act Three: The resolution is exposed to the protagonist and the plot unwinds in this characters favour.

I hear all too frequently the sad stories of parents with adult children who suffer from chronic illnesses like myself. Unlike myself these other children have pushed their parents away and maintained a solid, heart-breaking barrier between the two. It shames me to admit this is something I can understand only to well how and why this happens.

I have mentioned often that I have had strokes and seizures, as well as non-specific episodes, as a result of my vasculitis. What I have failed to mention is exactly what happens in these circumstances. To be honest, I only recently was able to find out what all of these reactions were for myself and how to determine which each was and when it was happening. It is only responsible of me now to share that knowledge so that everything is cleared up.

Undoubtedly the most severe and life-threatening of my illnesses, my trials through the affliction that is Vasculitis is still very real and present. I have tried my hardest to be […]

I was diagnosed with Bell’s Palsy only a day after being diagnosed with Rheumatoid Arthritis and a week before being diagnosed with Systemic Lupus Erythematosus. That is not to say […]

The song ‘When We Were Younger’ by Soja had resonated with me profoundly since the first time I heard it. The words are so strikingly similar to my own musings […]

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