Tuesday I came out of hiding (holidays) to fulfill my duties as a Murdoch University Volunteer Ambassador. The event was a gathering at the Kwinana Youth Zone to speak about […]

Just quietly, last weekend was uncomfortably full of various activities. Not only did I say goodbye to my darling Polly, but I also had my father visiting whilst he attended […]

Act Three: The resolution is exposed to the protagonist and the plot unwinds in this characters favour.

I hear all too frequently the sad stories of parents with adult children who suffer from chronic illnesses like myself. Unlike myself these other children have pushed their parents away and maintained a solid, heart-breaking barrier between the two. It shames me to admit this is something I can understand only to well how and why this happens.

As you may or may not know this past month has been quite an active time for my body when it comes to my health. I was raced to Fiona Stanley Hospital following a swift surprise onset of what appeared to be my inexplicable ‘anaphylaxis’. By this I mean that some time after 8pm my stomach began cramping, eyes reddened and itching, my lips swelling and airways closing. There is a small amount of time for me to seek medical attention before my airways close off and I lose consciousness. I made it and was treated, only losing three days to catching up on sleep. Exactly a week later my skin decided that it was not pleased with something and it began reacting to another mystery allergy with a my full-blown invisible skin rash. For the fortnight since then I have been coping with the skin allergy only with daily antihistamine prescription medicine Endep.

At this point I have to state very clearly that for the most part I am just pleased that I haven’t yet experienced any of the colds that are making the rounds at present. Prior to the hospital visit I had been to see my GP (General Practitioner) Evs regarding some other concerns. One of these was contraception and the other was a pain in my lower abdomen.

In Perth, Western Australia, we have just seen the Easter weekend. It signifies a four-day holiday for working adults, unless you are in the hospitality industry, the beginning of the school holiday break between terms one and two (in this state at least) and the start of the first week-long break from university (my university at least). The national holiday suspends business activity over the Friday, Sunday and Monday of the weekend, which creates a four-day long-weekend to enjoy the tail end of the long Australian Summer and celebrate Easter as individuals see fit.

My Lupus is atypical because it is ‘internet typical’

It was vital for me to provide an overview of Systemic Lupus Erythematosus (SLE or Lupus). Not only because it was a pretty hefty sum of information on its own, but also because you needed to understand about the illness as it typically is discussed. I referred close to the end of the text about how it can vary for individuals in how aggressive it is and the specifics of how it occurs within the body. I did this for a very important reason and that is this:

There is no typical Lupus patient.

I’ve been so inconsiderate. I’ve been lost in my own world of thought and when I do surface here it is normally with some musing over health versus ill-health or […]

Technology has brought us to an incredible point. From our seat in bed, on a bus, in a park or at our work desk we can read the latest thought […]

I am a daughter. A sister. A middle child. An adult. A woman. A relatively petite lady. A twenty six year old. A single white female. A mature-aged university student. […]

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